A family has been shown to carry genes for a rare condition. Researchers would like to use this family's test results as the basis for further study, but the family has serious reservations about participating
How should the researchers proceed? Note: Credit will be given only if all correct choices and no incorrect choices are selected.
Standard Text: Select all that apply.
1. Use the family's consent for the original testing as consent for the study.
2. Offer the family members understandable information about their role in this research.
3. Offer the family members financial reimbursement for being study participants.
4. Discuss how the findings of the research will be applied.
5. Accept that this family's reservations are probably insurmountable.
2,4
Rationale 1: Unless the original consent gave permission for further study, this is not ethical.
Rationale 2: Explaining the research and the family members' role increases the likelihood that they will participate.
Rationale 3: If the family has serious reservations about participating, money is not likely to change their decision.
Rationale 4: Understanding the expected outcomes of the research may encourage the family members to change their minds.
Rationale 5: The researchers should not give up without more discussion with the family.
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