An insurance company has requested that a client with a rare disease undergo genetic testing as part of a research project. The client is concerned and asks the nurse if this is a legal request
What should the nurse consider before responding? Note: Credit will be given only if all correct choices and no incorrect choices are selected.
Standard Text: Select all that apply.
1. This request should be prohibited under Title I of GINA.
2. According to GINA, the company can only request this if compliance is clearly voluntary.
3. The insurance company cannot use this information to change the client's premium.
4. The study must follow conditions concerning the protection of human subjects.
5. The company must have notified the federal government.
2,3,4,5
Rationale 1: There are exceptions to genetic information protection under GINA.
Rationale 2: GINA has an exception that states the client can be asked to participate in this study, but it must be very clear that participation is voluntary.
Rationale 3: The insurance company is prohibited from using any of the information collected in making decisions about enrollment status or premium.
Rationale 4: The health insurance company's study must comply with protections on human subjects.
Rationale 5: For this request to be appropriate, the company must have notified the federal government in writing with a description of activities conducted.
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