Nursing activities for a client with ALS and family include helping them
a. decide on an acceptable level of care early in the course of the disease.
b. determine if they want to share the diagnosis to allow genetic testing.
c. incorporate nonpharmacologic pain control techniques in the plan of care.
d. plan for extensive rehabilitation after exacerbations.
A
Disease management in ALS includes topics such as tube feedings and mechanical ventilation. Planning for an acceptable level of care should begin early in the disease, before a crisis occurs. Of course, decisions should be re-evaluated occasionally as the client's wishes may changes with their experiences with the disease. ALS is not a genetically-acquired disorder. Pain control is usually not an issue in the disease, and as the disease is relentlessly progressive (rather than cha-racterized by remissions and exacerbations), extensive rehabilitation is not utilized.
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