A family is raising a child with a serious disability, and the caregivers appear stressed and short tempered during well-child visits. What does the nurse understand about the emotional impact of this situation on the family?
(Select all that apply.)
A.
Caregiver fatigue is a constant threat due to ongoing medical needs.
B.
Confusion and distress occur because they don't have the child they expected.
C.
Family routine is disrupted by the constant needs of the disabled child.
D.
Siblings adapt well to having a disabled child and enjoy helping out.
E.
The family may worry about possible painful procedures and upsetting the child.
ANS: A, B, C, E
The family members of a disabled child are beset with emotional upset and confusion about the realities they face with their disabled child. They mourn because they did not get the child they expected, and they can be distressed by the child's pain and need for ongoing medical treatments. Caregiver fatigue is a real possibility, and normal routines are disrupted. Siblings can adapt to the disabled child and may enjoy helping out, but this is not a typical finding and should not be expected.
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