A patient wants to enroll in a research study that involves genetic testing but is worried that if the insurance carrier gets the results, coverage could be denied if the results showed a high risk for developing an expensive health problem
The nurse should explain that a. insurers cannot use research participants' genetic information against them.
b. research companies would not sell or otherwise share their participants' results.
c. this is a valid concern and has been the topic of several recent costly lawsuits.
d. there is legislation pending on this topic, but no law currently addresses this.
A
Under the Genetic Information Nondiscrimination Act (GINA), insurers and employers are prohibited from using research participants' genetic information against them.
Although everyone hopes that research companies would not sell or otherwise share their participants' results, there are enough concerns about the sharing of genetic information that President George W. Bush signed into law GINA in 2008 . Part of GINA addresses the use of research participants' genetic information.
It is true that the patient's concern is valid, but it has been addressed by the creation of GINA, which will hopefully forestall any need for litigation.
Currently, GINA is the law that covers genetic nondiscrimination by insurers and employers.
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