Many individuals in the deaf community often refuse genetic services because of a history of stigmatization. This reluctance is the result of:
1. Cultural influence.
2. Ignorance regarding available services.
3. High rate of noncompliance of treatments.
4. Low predictive value of genetic testing.
Culture influence.
Rationale: Many individuals in the deaf community refuse genetic services because they were stigmatized in the past by the culture in which they lived. For example, at one time in the United States, deaf individuals were sterilized and prohibited from marrying, and programs were developed to extinguish their language. Ignorance of available services or high rate of noncompliance of treatments is not a factor in their reluctance to be tested. Today, genetic testing and services are very reliable.
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