The right an individual has to be told that he is a potential participant in a research study and may decide not to be so best defines which of the following human rights?
a. Beneficence
b. Justice
c. Privacy
d. Self-determination
ANS: D
The right to self-determination holds that because humans are capable of self-determination, or controlling their own destiny, they should be treated as autonomous agents who have the freedom to conduct their lives as they choose without external controls. Privacy is an individual's right to determine the time, extent, and general circumstances under which personal information will be shared with or withheld from others. Justice holds that each person should be treated fairly and should receive what he or she is due or owed. The right to protection from discomfort and harm is based on the ethical principle of beneficence, which holds that one should do good and, above all, do no harm.
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